In an era in which prenatal screening has made it possible to detect and prevent genetic and chromosomal diseases, disabilities such as Down syndrome are becoming increasingly rare. And as their number dwindles, some fear that a significant component of our social diversity will disappear with them.
Little Henrik, about six years old, sits in his wheelchair with bracers around the spastic arms to prevent them from contracting, so that the muscles don’t become too short. ‘He is a pretty boy, but ‘empty’, they say. But his eyes aren’t empty.
Malformed embryos in formalin, a school desk for wheelchair users at a former institution for intellectually disabled, and artfully staged portraits of people with Down syndrome dressed as kings, divas or superheroes: As diverse as the subject of disability can be, showing it in museums is generally considered a sensitive issue.
Welcome to the blog of the research project Rethinking Disability, based at Leiden University and funded by the European Research Council. In this project we investigate the global impact of the International Year of Disabled Persons (1981) in historical perspective.